When you depend on strong nerve and muscle relaxant medications to continue to live as comfortable as you can be, you constantly ask yourself “how did I become like this?”
Up until I was about 26, after four years of excruciating pain from an incident which caused nerve damage, soft tissue damage and a lower back injury I was referred to a lovely neurosurgeon who specialises in people with chronic pain, many with physical disabilities.
I’m still under his care and whenever we see him he says “Jacqueline, what am I going to do with you?” Haha. Like within most aspects of my life concerning my disability and now health, I’m constantly told I’m “one-of a-kind!” Yay for me! But there’s gotta be someone out there with Cerebral Palsy, with severe scoliosis and luque rods…plus nerve damage which causes chronic nerve pain 24/7. Right? I’ve googled and searched. Unlike myself who’s extremely lucky to have communication, there’s not many with this luxury.
Back to the medications, most days I can’t wait to be showered, dressed and get my hair dried, just so I can have breakfast so I can take my meds, so I can bare the pain. On my really bad days I can’t even stomach eating breaky because my stomach’s churning from the pain.
There’s been lots of debating about legalising medical cannabis. Unfortunately like Gay Marriage, Australia’s very slow at accepting cannabis (a herb!) as a medicine; a much needed medicine to ease a whole list of illnesses and diseases.
To me, something that reduces seizures in CHILDREN is a no-brainer! Something that may help cancer patients with pain management and helps them to feel like eating again SHOULD be available freely. Something that reduces pain, spasming and minimises the need for prescribed medications for people with chronic pain and/or disabilities should be available now. Instead the Federal Government are dragging their heels and it seems like their interest in this manner could be about financial gain.
Thank God for Daniel Andrews, the Victorian state minister who started the ball rolling earlier this year when he stopped loving parents who are giving their suffering children cannabis oil from being charged. This oil is completely safe and greatly improves their kiddies’ lives. I know parents who would do anything to see their child pain-free and/or to reduce their elliptic fits. I’m far from being a child (I’m 40 in October), but I know somedays Mum wishes she could help me control my pain better.
Last night we watched the awesome documentary on SBS called “The Truth About Medical Marijuana” where it showed how in Israel people with illnesses and chronic pain are prescribed individual doses for their specific needs. Their system works! Peoples’ illnesses and chronic pain are eased. Cancer patients’ nausea dissipate so they can eat! And the “Professor” of medical cannabis treatment has been doing this for twenty years! TWENTY YEARS!
So I really hope by writing this post Australia legalises medical cannabis ASAP! My medications have cost me having a colostomy and a constant foggy brain. More to the point, I don’t wanna think “this is it? I can’t pursue my dreams due to my pain?”